2024 - Asking the Right Questions: How the Patient Perspective Impacts the Success of Rare Disease Studies

Discover an informative webinar that will explore effective strategies for integrating patient perspectives and priorities into rare disease studies to increase engagement, accelerate enrollment and optimize study success.
Rare diseases affect a small percentage of the population but have a profound impact on the lives of both patients and their loved ones. For most patients with rare diseases, the journey to diagnosis is long and the options for treatment are limited.
While clinical trials offer hope for addressing the significant unmet need in rare diseases, rare disease studies must be developed with the patient perspective in mind. Asking patients and caregivers about the challenges they face and the expectations they have of study participation is critical for designing and executing successful clinical trials.
In this webinar, the attendees will gain insights into crucial concepts for rare disease clinical research, including the unique challenges it presents. The expert speakers will focus on methods for building relationships with patients early in the development process, strategies for seeking and incorporating patient feedback to create relevant and feasible study designs and options for enhancing the overall experience of study participation.
Register for this webinar to learn how integrating patient perspectives into rare disease studies can enhance engagement, accelerate enrollment and optimize success.
Keywords: Rare Disease, Clinical Research, CRO, Patient Recruitment, Patient Engagement, Therapeutic Areas, Rare Disease Trials, Rare Disease Clinical Trials, Rare Diseases/Orphan Drugs